So the last time I updated was upon arrival to Germany. It has been an interesting experience. Jasmin was completely worn out. When we arrived in Dusseldorf at X-Cell Center for her transplant, Jasmin had become weak from so many different things. First the water change, time difference and the weather. Not to mention the flight. Our first appointment with Dr. Elsisi went great, we had such high hopes. On Tuesday the bone marrow extraction was quite simple. The whole procedure took less than 20 minutes and then an hour later we were on our way home.
We got vey lucky to meet new people in Dusseldorf we now consider family. They opened their hearts and homes to us.
On Thursday we met with Professor Haberland, MD,. We were told some devastating news. Jasmin only had ONE Million stem cells and the requirement was 2 Million. Professor Haberland stated that the stem cells had 98% viability (so that was a good thing, at least) and she still had a good chance for some recovery.
The option was ours of coarse to continue or not. I don't really think we had a choice. Jasmin had to have the transplant. So my mom and I prayed and left it in GOD's hands. We gave to ok and Jasmin had the transplant.
Again the procedure itself was relatively simple, 15 min in and out.
Recovery was very difficult for Jasmin, sleeping almost 20 hours of the day, not eating, unable to move. She became weaker day by day. We knew we need to do something to stimulate her body. So we went to church. I swear its amazing. Jasmin drank water from chruch and when we got home she started to eat. Her energy started to come back and the pain lessened day by day.
She still slept most of the day but at least her appetite was back. We could not wait to get home.
Our flight back was much better. I had called British Airways and gave them a lesson in custumer relations. I have to say I think it worked. Actually it was not the airline so much as the airport in London that gave us a diffcult time. On the way back home The Captain of the plane gave Jasmin her own flight book and visited with her for a few miniutes. That meant more to us than anyone could know.
We start therapy next week. We are giving Jasmin a little more recovery time. She is still very tired and her appetite is still lacking but improving everyday.
We believe that the stem cells are working and that is the cause of her being so tired. We noticed a few days after transplant that Jasmin was no longer drooling, her muscles were more controlled- her spasticity had decreased. She is able to sit up with little support. Also when you talk to her now she will turn her head and look at you.
Small little changes giving great hope.
Please forgive me for taking so long to update this site. I will try to post regulary as changes are noted.
About Me
- Jasmins Cause
- Jasmin is a beautiful little girl who is full of life, love, and laughter. She was born prematurly at 26 weeks and had a severe brain bleed. Because of the difficulties after birth Jasmin is unable to walk or talk. You can see that she has a personality,an inner being that is full of light. She laughs and cries. Many doctors told us that she would never feel- but she does. She feels when her brother or sister are ill- she cries when they do and laughs when they do. The most amazing thing is that inside the body is a little girl who is trying to come out. Her personality shines and draws people to her.
No comments:
Post a Comment