Return from Germany

So the last time I updated was upon arrival to Germany. It has been an interesting experience. Jasmin was completely worn out. When we arrived in Dusseldorf at X-Cell Center for her transplant, Jasmin had become weak from so many different things. First the water change, time difference and the weather. Not to mention the flight. Our first appointment with Dr. Elsisi went great, we had such high hopes. On Tuesday the bone marrow extraction was quite simple. The whole procedure took less than 20 minutes and then an hour later we were on our way home.

We got vey lucky to meet new people in Dusseldorf we now consider family. They opened their hearts and homes to us.
On Thursday we met with Professor Haberland, MD,. We were told some devastating news. Jasmin only had ONE Million stem cells and the requirement was 2 Million. Professor Haberland stated that the stem cells had 98% viability (so that was a good thing, at least) and she still had a good chance for some recovery.

The option was ours of coarse to continue or not. I don't really think we had a choice. Jasmin had to have the transplant. So my mom and I prayed and left it in GOD's hands. We gave to ok and Jasmin had the transplant.
Again the procedure itself was relatively simple, 15 min in and out.

Recovery was very difficult for Jasmin, sleeping almost 20 hours of the day, not eating, unable to move. She became weaker day by day. We knew we need to do something to stimulate her body. So we went to church. I swear its amazing. Jasmin drank water from chruch and when we got home she started to eat. Her energy started to come back and the pain lessened day by day.

She still slept most of the day but at least her appetite was back. We could not wait to get home.

Our flight back was much better. I had called British Airways and gave them a lesson in custumer relations. I have to say I think it worked. Actually it was not the airline so much as the airport in London that gave us a diffcult time. On the way back home The Captain of the plane gave Jasmin her own flight book and visited with her for a few miniutes. That meant more to us than anyone could know.

We start therapy next week. We are giving Jasmin a little more recovery time. She is still very tired and her appetite is still lacking but improving everyday.

We believe that the stem cells are working and that is the cause of her being so tired. We noticed a few days after transplant that Jasmin was no longer drooling, her muscles were more controlled- her spasticity had decreased. She is able to sit up with little support. Also when you talk to her now she will turn her head and look at you.

Small little changes giving great hope.

Please forgive me for taking so long to update this site. I will try to post regulary as changes are noted.

We have reached Germany

We have finally reached Germany. We had a difficult trip. Jasmin got very ill on the plane. It was so hot that she would not stop crying. The airplane was ready for take off and my mom and I still could not get her to quiet down. We were afraid they would kick us off. We kept asking them to turn the air on in the plane and we were told to buckle her in. We were finally able to quiet her down to get her buckled in. Once the plane was in the air she settled right down. After that the flight was uneventfull untill we reached Heathrow airport in London and had to go through securtiy again. That was the WORST experience of our lives. So we knew that we had to take all of Jasmins meds out of her carry on so they could inspect them. No BIG deal RIGHT!!!! I was sooooo wrong. London airport security told us we either fed Jasmin SIX jars of baby food right there and then or they would throw them out. Then they made me taste each and every liquid medication. Now I was prepared or so I thougt. I had gone to the doctor and asked for a note stating that we would be traveling with baby food and medications because of the disabilities Jasmin has. London airport were the most uncaring, selfish, jerks I had ever met. They made us open sealed bottles of nutrition and had me drink out of each bottle. Look I'm all for a secure flight but this was rediculous. They stated that they did not care if the milk went bad and that we had two hours from time of ipening the bottles to give them to her before they went bad. They then proceded to rip our luggage apart, throw our clothes on the floor. Lets just say We were glad we had finally made it.

Jasmins Cause: Jasmins VOICE

Jasmins Cause: Jasmins VOICE

Jasmins VOICE

I have created a site on Face Book for Jasmin called Jasmins VOICE. This site in addition to our blog will contain all information from Jasmins Journey to find a VOICE. I hope you will link to this site also.

2 Weeks Left

We are getting excited about going to Germany for Jasmins Stem Cell Transplant. Today I tried to explain to Jasmin what we are doing and why and all I can say is WOW! She smiled at me, and when I told her that with this treatment she may talk she started to laugh. It was amazing to see that. I know that Jasmin understands a lot more than the doctors give her credit for. When I asked her if she wanted to have this treatment she started to make her "sounds" laughing and got excited. That told me she understood.
Well were trying to get everything ready to go.

We want to thank everyone who has donated to Jasmin's Cause. To all of our neighbors and friends. To all who gave without question. We appreciate it, you are helping us give Jasmin A VOICE.

We are still asking for help. ALL donations are appreciated and greatly needed.

Valley family hopes Germany stem cell transplant could help daughter talk

Valley family hopes Germany stem cell transplant could help daughter talk

Link to Jasmins Interview

Here is the link to Jasmins interview on ABC 15 News

Jasmins' mom

Our News Interview

Today was an amazing day. ABC 15 News came to our house to interview us for Jasmins' story. I think I cried more than talked. All I could think about is my baby talking and asking for hugs, and I cried more. We (my family and I) were so happy about sharing our story to give hope to other families.

THERE IS HOPE!

Parents of children with disabilites understand that life can be hard, but we make the best of each day. We love our children and try to provide what we can to meet their needs. If there is a chance that a treatment for Cerabral Pasly is found then
I believe we need to take that chance.

Our children did not have a choice, but with new medicine we can give them a chance for a future.

My son Joseph (Jasmins' twin brother) prays every night for "OH GOD sissy walk and talk, go school, go college". That is the longest sentence he has ever spoken.I hope that with this stem cell transplant his prayer and ours comes true.

Jasmins' mom

Give Forward Donation site

On the left side of the page you will see a Give Forward site that you can just click on to make donations.
Thank you again for all your support
Jasmins Mom

Donations can now be taken to any Wells Fargo Bank

Hi eveyone, we are working on fundraising and getting ready to go to Germany. We have set up an account at Wells Fargo Bank for donations. information is posted at the bottom of the blog.
OR just walk in and ask to donate to Jasmin Khananisho. We thank and appreciate all of your help
Jasmins' mom

Need your help to get Jasmin to Germany

Hi everyone
We need your help to get Jasmin to Germany. Any donations will greatly be appreciated. If you know of anyone who can help please send this blog to them
thanks again
sameera

Jasmins Cause: Jasmins Cause: X- Cell Treatment Center

Jasmins Cause: Jasmins Cause: X- Cell Treatment Center

Jasmins Cause: X- Cell Treatment Center

Jasmins Cause: X- Cell Treatment Center

X- Cell Treatment Center

We just got approved for stem cell transplant at X- Cell Treatment center in Dusselsorf, Germany. Our journey now begins. We will soon begin fundraising. The procedure we are seeking is Endoscopic Stem Cell Transplant and the cost is $24,000.00 US dollars.

No promises were given. It is our hope that by having this treatment that Jasmin will have a better quailty of life. I am asking everyone to please help Jasmin. Evey dollar helps. We live in a country that helps one another- we have been blessed by the love we have for each other. I ask now to help me get the treatment for my daughter.

Once we return from Germany, we will be starting intensive therapys. Physical, Occupational, and Speech therapy.

Soon I will have posted information on where donations can be sent.
We thank you again for all your support

Jasmins' MOM